Did you miss one of our amazing communication webinar sessions or wish to rewatch one? Don’t worry we have a list of links for you! Our next session is on Monday “AAC in School: Tips for Parent Advocacy” PODDS and Literacy https://youtu.be/L–28fQw1jg AAC: Where to Start https://youtu.be/fKsf6CmrYA8 Shared Reading and AAC https://youtu.be/bSjirGZq3vg Supporting Communication and Independence with Grid https://youtu.be/uLKg2h2aHTc […]
Tag: rett
Canada Lights Up for Rett Syndrome!
October is Rett Syndrome Awareness Month! As it comes to an end, we want to feature the places that lit up yesterday (October 29th) for Rett Syndrome Awareness. Below is a slideshow of a few places in BC that we captured, as well as the list of places for all of Canada. Let us know […]
iPad Raffle!
It’s finally here! Our annual fundraiser is up and running, however, this year it looks a bit different!This year you can purchase your tickets online! No more need for paper booklets, collecting change, and mailing checks. Simply follow the link, purchase your tickets and share this post with all your family and friends! This fundraiser […]
AGM Reminder and Itinerary
AGM May 2nd @ 7:30pm via Zoom Please join us for our annual general meeting. All members need to attend this ONE meeting on an annual basis to ensure we can continue to support families. This is your time to ask questions and have your voice heard. So far all those on the board would […]
National Volunteer Week- Vivian Hou
UBC student, Vivian Hou, reached out to RSSBC in June of 2020 to offer her amazing drawing/sketching skills. Vivian spent months creating a new tool for children to understand why their peers are both similar yet different. This amazing tool was built into a coloring book that can be used in both school or community […]
National Volunteer Week- Arlena Musinga Kamuzima
UBC student Arlena approached RSSBC in 2020 just after the pandemic hit. She has been building RSSBC’s newsletter designs and sending them to all our members and supporters on a regular basis. She has found new programs to make this not only easier for the society but also more appealing for those to read and […]
National Volunteer Week- Kathryn Shantora
Kathryn Shantora is the co-founder of RSSBC. She helped build the community well before RSSBC was established in 2013. She hosted/supported multiple meetings and connected with many families giving them a place to feel safe while talking about daily challenges. Kathryn’s busy schedule meant she was not able to take on a large role with […]
National Volunteer Week- Christine Little
Christine is a veterinarian by trade and has been a huge asset to our organization. She comes with a medical background and is able to put medical terminology to plain language. Christine works tirelessly on creating snapshot reports on research papers all while finding ways that RSSBC can raise funds to ensure our programs are […]
National Volunteer Week- Karl Lam
Karl, a web designer and father to a child with Rett Syndrome connected with RSSBC after his child was diagnosed. He offered up his skill set to help develop a new website, promoting not only the society but to help get resources and information to families and supporters in a timely and efficient manner. Karl […]
National Volunteer Week- Alice Wang
Alice has been volunteering with RSSBC since the summer of 2020. She was instrumental in our Rett Syndrome awareness campaign in October. She tirelessly contacted every mayor/city in which a person with Rett Syndrome lived in BC, asking for a light-up event and/or proclamation. It was because of her efforts that we had 10 locations […]