News

Josh’s Journey: Part 7

From Josh: June 17, 2021 After leaving Grasslands National Park, we continued our way east on some secondary highways in southern Saskatchewan. We made our way through Gravelbourg, a small francophone town that was featured in a recent season of CBC’s “Still Standing”, a TV series showcasing Canada’s struggling small towns. While much of what…
Josh’s Journey: Part 6

From Josh: June 14, 2021 Grasslands National Park is Canada’s only national park that represents a prairie grassland ecosystem. It’s located in Southern Saskatchewan and is broken up into two parts that are about 150km apart – the West-East Blocks. We recently spent four nights in the West Block and were really surprised by how…
Josh’s Journey: Part 5

From Josh: June 9, 2021 We recently got to spend about 18 hours in Dinosaur Provincial Park in SE Alberta and wish we had a week. It was unbelievable there, with hiking and exploring to do for days! I got myself stuck halfway around the campsite loop (the park’s website said we could fit in…
Josh’s Journey: Part 4

From Josh: June 4, 2021 We’ve now been out of our house and on the road for a full two weeks. Can’t believe it – it’s flown by and we are nowhere near feeling like we’re done yet, which I suppose is good! Road life seems to suit us well so far – we are…
Kayla Eats: Spicy Mango Poke Bowl

Today’s Eat: Spicy Mango Poké Bowl made by myself and the #kwalkhypeteam The process 🥣:My favourite parts were ripping the seaweed, peeling the onion, and squeezing and mixing the mayo and sriracha to make Spicy Mayo. I have been dreaming about trying my Mango Pulp. I can’t wait to see how it tastes, but I think…
Josh’s Journey: Part 3

From Josh: May 29, 2021 Since we left Vancouver on Tuesday morning, our days have been pretty busy! We drove a full day to Clearwater, BC where we camped before continuing on to Mt. Robson Provincial Park for a night. We had planned to spend 3 nights there, but with our delayed departure due to…
Kayla Eats: Rainbow Cupcakes!

Rainbow 🌈 Bit cupcakes with vanilla whipped frosting and rainbow sprinkles; made by myself and the #kwalkhypeteam Making the Cupcakes 🧁:We poured in the cake mix, my first favourite part was cracking the eggs. Then we mixed in the ingredients and cooked them in the oven. My next favourite part was putting the cupcake in my…
Josh’s Journey: Part 2

From Josh: May 23, 2021 We made it to Vancouver, picked up June from Canuck Place (where she had a great stay – thank you CP team!), and settled into our spot in Vancouver to wait out the end of the BC travel restrictions. We’ve been on a couple of walks and are also using…
Introducing: Kayla Walker!

We are excited to be posting content about Kayla Walker and her food blog. Kayla is 19 years old and loves to have fun and spend time with friends and family. Kayla’s mom, Christinea, is the president of RSSBC. Her food blog is on Instagram: @kwalk.eats Here is an excerpt from her page!
Josh’s Journey

We are very happy to introduce a new ongoing segment in our news! Josh McCulloch and his family have currently embarked on a journey across Canada in their RV. Josh and his wife have two kids, and one of them, June, has Rett Syndrome. Josh has given us permission to share his story and we…
iPad Raffle Winner

Thank you all for participating in the raffle for this year! We are pleased to announce the winner…Carole St. Arnaud! Congratulations Carole!
iPad Raffle!

It’s finally here! Our annual fundraiser is up and running, however, this year it looks a bit different!This year you can purchase your tickets online! No more need for paper booklets, collecting change, and mailing checks. Simply follow the link, purchase your tickets and share this post with all your family and friends! This fundraiser…
AGM-Tonight

RSSBC’s AGM is tonight (May. 2nd) at 7:30 pm on Zoom! Please contact info@rssbc.ca for the link and more information! Hope to see you there 🙂 -The RSSBC Team
AGM Reminder and Itinerary

AGM May 2nd @ 7:30pm via Zoom Please join us for our annual general meeting. All members need to attend this ONE meeting on an annual basis to ensure we can continue to support families. This is your time to ask questions and have your voice heard. So far all those on the board would…
National Volunteer Week- Vivian Hou

UBC student, Vivian Hou, reached out to RSSBC in June of 2020 to offer her amazing drawing/sketching skills. Vivian spent months creating a new tool for children to understand why their peers are both similar yet different. This amazing tool was built into a coloring book that can be used in both school or community…
National Volunteer Week- Arlena Musinga Kamuzima

UBC student Arlena approached RSSBC in 2020 just after the pandemic hit. She has been building RSSBC’s newsletter designs and sending them to all our members and supporters on a regular basis. She has found new programs to make this not only easier for the society but also more appealing for those to read and…
National Volunteer Week- Kathryn Shantora

Kathryn Shantora is the co-founder of RSSBC. She helped build the community well before RSSBC was established in 2013. She hosted/supported multiple meetings and connected with many families giving them a place to feel safe while talking about daily challenges. Kathryn’s busy schedule meant she was not able to take on a large role with…
National Volunteer Week- Christine Little

Christine is a veterinarian by trade and has been a huge asset to our organization. She comes with a medical background and is able to put medical terminology to plain language. Christine works tirelessly on creating snapshot reports on research papers all while finding ways that RSSBC can raise funds to ensure our programs are…
National Volunteer Week- Karl Lam

Karl, a web designer and father to a child with Rett Syndrome connected with RSSBC after his child was diagnosed. He offered up his skill set to help develop a new website, promoting not only the society but to help get resources and information to families and supporters in a timely and efficient manner. Karl…
National Volunteer Week- Alice Wang

Alice has been volunteering with RSSBC since the summer of 2020. She was instrumental in our Rett Syndrome awareness campaign in October. She tirelessly contacted every mayor/city in which a person with Rett Syndrome lived in BC, asking for a light-up event and/or proclamation. It was because of her efforts that we had 10 locations…
National Volunteer Week- Leigh Anne Stitt

Entrepreneur, Leigh Anne Stitt has been volunteering with RSSBC for two years. She reached out to RSSBC after her niece was diagnosed. She wanted to help not only her niece and family but others like them. Leigh Anne accepted the Vice President position and has been a huge assist to the society. Leigh Anne brings…
National Volunteer Week- Rachel Kwong

High school student, Rachel Kwong has been volunteering with RSSBC since August 2020. Rachel has been working on perfecting RSSBC’s new website. Each week she looks at the website and ensures that it is current, appealing, and easy for all to use. Without Rachel, RSSBC would not be able to keep our community informed and…
National Volunteer Week- Tiffany Wai

UBC student, Tiffany Wai has been a volunteer with R.S.S.B.C. for just over a year now. She contacted the society in 2020 just after the pandemic first hit. She was looking for a way to apply her skill that would serve our community. Throughout the year she took on multiple roles such as social media…
National Volunteer Week

The Value of One, The Power of Many, reflects on the awe-inspiring acts of kindness by millions of individuals AND the magic that happens when we work together towards a common purpose. Therefore RSSBC will be showcasing one amazing volunteer per day throughout the week describing how their efforts have impacted RSSBC and the families…
Easter Tips

Here is Day 4 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us! Finally, plan ahead. You know your child better than anyone, so anticipate trouble spots before they happen. Pack a busy bag…
Easter Tips

Here is Day 3 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us! Go candy-free. Children with special needs often have some sort of food restriction. Eliminate the issue by filling your Easter eggs…
Easter Tips

Here is Day 2 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us! Adapt your Easter Egg hunt. No one is less happy than a kid with an empty basket at the end of…
Easter Tips

Here is Day 1 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us! Put down that Easter bonnet. The adorable smocking on that fancy Easter dress or the stiff dress shirt and tie might…
Virtual Family Social

Join us for our virtual family social on Wednesday at noon! Date and Time: Wednesday, March 24, 2021 at 12:00 pm Location: Zoom Zoom Link: Contact info@rettbc.ca for the link and more information If you have any questions or concerns, please contact info@rettbc.ca also. Keep up to date with family socials like this one and what…
Rett Syndrome Family Symposium

Due to Covid 19 this event has been postponed.
Welcome to our new website!

I would like to take a minute and say thank you for visiting our website. Learning about Rett Syndrome can feel daunting regardless of the reasons you are doing so. However, know that you are not alone. We at R.S.S.B.C. are here to support you whether you have a relative with Rett Syndrome, are a…
In Person Social Sept 21

RSSBC is hosting its first in-person event since 2018 at Unwin Park in Surrey. Join us for an afternoon of fun, connection and lunch. This event is rain or shine. RSSBC will provide tents to ensure there is shelter from the elements. Simply bring your family and a chair to relax in. The 12,000-square-foot playground…
Rett Syndrome AGM

The Rett Syndrome Society of BC Annual General Meeting is Sunday April 30th at 7:30 pm! For those who are part of our newsletter mailing list, you should have gotten an email invite, if not, please email info@rettbc.ca so that you can participate! As a society, we would love to hear your opinions, thoughts, feelings,…
Raffle Winners!

We are proud to announce the winners of this year’s raffle. Thank you to all who participated! $300.00 Amazon gift card – T. Faulkner, from Kamloops, BC $150.00 Amazon gift card – K. Krall, from North Delta, BC $100.00 Amazon gift card – K. Bjorgaard, from Thornhill, BC