Rett Syndrome:is a unique developmental disorder that begins to show its affects in infancy or early childhood. It is seen almost exclusively in females, and is found in a variety of racial and ethnic groups throughout the world.
WHO IS THE RETT SYNDROME SOCIETY OF B.C.?
The Rett Syndrome Society of British Columbia (R.S.S.B.C) is a volunteer, non-profit charity for parents, caregivers, researchers, medical professionals and other interested support agencies and individuals. R.S.S.B.C. became incorporated in 2013. The Board of Directors is comprised of parents and caring citizens. R.S.S.B.C. provides information through a website, newsletters and emails. The society helps fund Canadian research projects and advocates to the needs of individuals with Rett Syndrome and their families in the province of BC.
Our mission is to support, educate, and empower those that live with Rett Syndrome and their families. Also to aid financially in research aimed at finding a cure for Rett Syndrome.
HOW WE HELP
- Provide information and support to families of those diagnosedwith Rett Syndrome
- Raise awareness in both the public and medical communities
- Provide funds to research projects
- Provide informative newsletters
- Host gatherings to provide support and networking opportunities
HOW YOU CAN HELP
- Join R.S.S.B.C.
- Make a donation or volunteer your time
- Attend or host a fundraising event
- Make others aware of R.S.S.B.C. and Rett Syndrome.